A
male
age
41-50,
*igman09
writes:This may come across as a myth, however, I assure you it is not. I have a condition called Diencephalic syndrome, meaning I have an extremely large penis. Last time I went to the doctor's it was measured at approximately 18 inches in length. My question is how do I find a partner who will not be scared by my endowment? Or better yet, who will be able to physically handle it? And lastly, I am nervous to become sexually active with a woman because I do not know what she will think of my penis and its enormous length, so how do I bring up the topic of my condition? I really appreciate any advice, many people may think I am a lucky man but that is not the case. I have been living in somewhat of a shell because of this and just want to be able to live my life as everyone.
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male
reader, somewhat_anonymous +, writes (8 August 2007):
I don't know if that "farther away technique" just mentioned would work. Is the width a problem too? If you try that stand at the end of the bed from further away, maybe you could hold your penis about 1/2 or 2/3 of the way down so your hand helps preventing you from entering too far.
A
male
reader, anonymous, writes (7 August 2007): People, the man has a problem and has been to doctors, why Google and make an internet diagnosis when he already knows the problem.
Wish I could be of better service here, but be honest and remember there's always the other sexual activity you could enjoy besides good old fashioned sex. Other than that, you could try it, your partner in the bed and you standing a bit farther away. I don't know if it would work well or not and I am sure it is easier said than done. It might take away the closeness of it all though. BE CAREFUL IF YOU TRY IT.
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A
female
reader, anonymous, writes (24 June 2007): What I want to know is, how do I find a man like you? I need to find a man who will be the love of my life and is extremely well-endowed, and not bear the brunt of insult and shock most men will put on to be when you try to find out (all the while they're staring at my boobs). Nothing, absolutely nothing does it for me more sexually than a man with a huge penis. I assure you, if it's not me, the woman of your dreams IS definitely out there, and far from any disgust or fear, is absolutely hungry for YOU!!!!!
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A
female
reader, AbbyTomko  +, writes (23 June 2007):
 Aww. you should just tell the girl quite early on in the relationship so she knows what 2 expect and if she's a nice girl she will be very understanding although i bet its not such a bad thing all the time xx
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A
reader, anonymous, writes (21 June 2007): Hi hun,
This must be very difficult for you, i to am adopted and it is hard when asked if you have any family history of illness and you cant answer that question. Yes your condition is more common in children but also there have been cases in older children and adults...With the certain side affects of which of one you have stated, And although your condition is at the very least not pleasant it was not from what i understood to be the reason for your question.. I do hope your feeling ok as i do feel for you and your situation, please take care and look after you i do also hope you find happiness with a partner lots of love and luck Mandy xxx
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A
female
reader, Wendyg +, writes (21 June 2007):
 I must say im a little perplexed at this condition. I have heard of several things that can make the Penis unusually large, and they normally consist of Pituitary Tumours, or things that control the hormone growth in an excessive way and the thing that you describe is very rare anyway and even rarer in adults... I would be somewhat suprised if it is the same condition, as this is generally caused by a Brain Tumour which nine times out of ten is inoperable and untreatable and normally associated with the lose of weight or the failure for the penis to grow properly due to lack of hormone present. Larger penises would be present with an over zealous amount of hormone being produced and with the condition Diencephalic syndrome its an underactive hormone That causings the main problem due to pressure within the middle of the brain an "Diencephalic syndrome is usually caused by a brain tumor such as a low-grade glioma or astrocytoma.. Which affects the vision, or the optical nerve due to location, and other things such as memory function, paler, and sometimes blindness. Its in the part of the central nervous system, sometimes having a fatal outlook. Now if your dotor has told you, that you have this, I would for one be dumbfounded. I would think that it could be a distant relative possibly of hyperfunction - Hypothalamic-pituitary dysfunction ? If you have this type of brain tumour my penis size would be the least of my worries. Im not saying I dont believe you, I just think you the medical name you are quoting is incorrect, or you have been misinformed.
I have also heard that men with large penis's do have to be careful when substataining an erection as it uses a lot of blood to make it erect, which can cause alot further problems!
When your ready to embark in sexual liasons with women then dont feel embarrased or shy, this makes you you! Im sure that any women worth her salt isnt going to go making fun of you, or think your a freak, if you care for someone, it doesnt matter what you have or havent got.. so when you find the right woman, you will know its right, and when it happens, so longs you take your time then there really shouldnt be any problems, its the same whatever size your penis, a women likes to be handled with care, in your case you just need to be that little bit more gentle and remember she wont be able to recieve all your penis, when having sex. Provided your women is happy and relaxed with all this im sure she will be able to tell you if things are too much for her, or how she would like you to pleasure her. its all about being gentle, taking your time and working out what both of you want from this sexual experience, it doesnt just have to be full blown sex, you can try all sorts of other things, dont limit yourself and take your time, theres no reason why this should stop you.
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A
female
reader, AskEve +, writes (20 June 2007):
 It's easy for anyone to google your condition but it is far more complex than what other aunts have copied and pasted and I believe what you're saying. So what to do about it? Personally I don't think you have anything to worry about. Your penis is bigger than normal so I say be proud of it! As you know a lot of guys would die for a organ like yours and a lot of women would just love to have sex with a man so well endowed. Just because it's bigger doesn't mean you can't have sex, it just means the woman you make love to won't be able to accommodate all of your penis inside her but you will still be able to satisfy her just the same and you will also be able to have orgasms which will satisfy you.
Be proud of your body hun and be choosy about you you sleep with, make sure you get to know them well and even mention your size (not your condition) as you get to know one another better. You will still be able to wear a condom the same as men with smaller organs, as long as it covers the tip of the penis and goes up the shaft a few inches then I say just enjoy yourself and have fun! Look at it as a positive and not a negative and you'll be absolutely fine.
Eve
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A
male
reader, bigman09 +, writes (20 June 2007):
bigman09 is verified as being by the original poster of the questionmissprinsess2u thank you for writing the exact same thing as a previous anonymous person. I already stated I am not going to debate the fact that I have a problem. This is absolutely ridiculous. I would like to seriously thank those who have offered genuine advice though, but if all I am going to hear is stupid things from what people googled then I am done with this website.
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A
female
reader, missprinsess2u +, writes (20 June 2007):
 Do better Research to your so called problem.
Diencephalic syndrome is a rare but potentially lethal cause of failure to thrive in infants and young children. The diencephalic syndrome includes clinical characteristics of severe emaciation, normal linear growth, and normal or precocious intellectual development in association with central nervous system tumors. Our group initially described a series of 9 patients with diencephalic syndrome and found a reduced prevalence of emesis, hyperalertness, or hyperactivity compared with previous reports. Also, the tumors were found to be larger, occur at a younger age, and behave more aggressively than similarly located tumors without diencephalic syndrome. We have been able to extend our follow-up of the original patients, as well as describe 2 additional cases. Because the mechanism of the growth and endocrinologic findings in diencephalic syndrome has not been explained, we report on these patients in light of current research on hypothalamic factors that affect growth and weight. This study emphasizes diencephalic syndrome as a model for additional study of growth hormone resistance and metabolic regulation of adiposity
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A
female
reader, anonymous, writes (20 June 2007): It actually says right here on this website that a large penis is a clinical symptom of the disorder.http://www.orpha.net/static/GB/diencephalic_syndrome.htmlI will tell you there is no woman that can take the whole 18" in. A vagina is only about 7" deep. That is not to say that you can't have sex, but you'll have to come up with ways to do it so that you don't hurt the woman. There are also other things you can do sexually with a woman other than just intercourse. I don't think that this means you won't be able to sexually satisfy a woman, like I said just be careful. If she loves you, this won't be a reason to not be with you. Don't even think about it. Just get to know a woman 1st, then tell her. She can either handle it or not. But I don't see the big deal.
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A
male
reader, bigman09 +, writes (20 June 2007):
bigman09 is verified as being by the original poster of the questionLook I am not going to debate whether or not I have this condition, for the anonymous writer I would like to refer you to this page:
http://www.orpha.net/static/GB/diencephalic_syndrome.html
Look at clinical signs. I assure you I have been to several doctors and this is what I have been diagnosed with. I also have other conditions which are associated with macrocephaly-hamartomas-papilledema. It is hereditary, but I did not know of this until I saw a doctor because I was adopted.
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A
reader, anonymous, writes (20 June 2007): Hi hun,
I understand were your coming from, and it cant be very nice for you, i no most men are probably thinking your so lucky but i understand from your point of veiw how difficult it is for you relationship wise. When you do meet someone and you think it is going to lead to something special explain how you feel and sweety if she cares about you then together you will be adle to work out a comfortable sex life for the both of you, Most men would kill for a large penis i no but its not all about size and for you it must be very stressfull just wanting a normal and healthy relationship, all you can do at the end of the day is trust your instincts with a partner and be honest. Honesty is the best policy and its the person within we love i do hope you find someone who will appreciate you for who you are and also find happiness TAKE CARE LOTS OF LOVE AND LUCK MANDY XXX
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A
reader, anonymous, writes (20 June 2007): Diencephalic syndrome is a rare but potentially lethal cause of failure to thrive in infants and young children. The diencephalic syndrome includes clinical characteristics of severe emaciation, normal linear growth, and normal or precocious intellectual development in association with central nervous system tumors. Nice try.
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